I was surpised to feel quite good as I woke up on Wednesday morning. I don’t usually sleep well on a flat bed. My adjustable bed at home has been my friend for many years and acommodates the hyper mobile joints very well. So to wake up feeling refreshed after sleeping on a box spring,Continue reading “June 24th – Trains and Castles”
Tag Archives: Weekly Diary
2026 Greek Vacation
Once upon a time a family member asked ‘If you could go anywhere, where would you want to go’. I think their intention was to find a way to arrange something fun for us to do but, I couldn’t answer the question. I’d gotten so used to my illness and disabilities limiting me, that IContinue reading “2026 Greek Vacation”
June 23rd – Travel Day!
To the airport! At 3:30am. I don‘t remember the last time I got up at 2am for anything. Today I just happen to have to get up, because there’s a taxi on it’s way. I can probably count on one hand, the few times I’ve been to an airport. The idea of going there alwaysContinue reading “June 23rd – Travel Day!”
How to Talk to a Deafblind Person Without Panicking
Dear Readers, As I continue my journey through the wonderfully chaotic world of Deafblindness, I’ve noticed something rather interesting about the people around me. Most people want to help. They truly do. Unfortunately, many of them panic slightly first. Some become overly cautious, as if I’m a rare museum artifact that might crumble into dustContinue reading “How to Talk to a Deafblind Person Without Panicking”
All Of Me
Living with multiple illnesses, disabilities, and daily challenges has taught me a great deal—not just about myself, but about the people around me who don’t walk in my shoes. I’m not talking about my family or close friends, the ones who’ve watched me grow and adapt. I’m talking about society at large, and the professionalsContinue reading “All Of Me”
Carrying Light Into 2026
Standing and watching the last-ever street fireworks on New Year’s Eve—before the ban is implemented—made me reflect on all the changes 2025 brought with it. Lower blood sugar. A little more mobility. A hearing aid in my right ear to join the left one I was already wearing. I found new online friends. I dealtContinue reading “Carrying Light Into 2026”
A Little Light for Christmas
This is a story about light — the kind that shows up softly, even when you’re not sure it will. When I was sixteen, I moved away from home for the first time. I lived in college dorms, which—contrary to every brochure ever printed—felt less like a cozy place to live and learn and moreContinue reading “A Little Light for Christmas”
From Bird Drama to Banana Trauma
It’s been a while since I wrote an actual blog.Sure, I’ve been gracing you with the delightful chaos my brain dreams up, but now… brace yourselves… I have actual news. It began with a hard decision. I’d been dealing with sneezing fits and mild breathing issues while caring for our budgies, Yin and Yang. Yang,Continue reading “From Bird Drama to Banana Trauma”
Deafinitely Not What I Expected: The Blog My Brain Wrote While I Slept
Dear Readers, After a late night and little sleep, I became painfully aware that I had just two hours left to catch more z’s when the light started seeping through my curtains. That’s when it happened again. Instead of falling into deep sleep, my brain dragged me into another dream where it mixed a tinyContinue reading “Deafinitely Not What I Expected: The Blog My Brain Wrote While I Slept”
When Blogging Fails, Dreams Deliver
Dear Readers, I wasn’t planning on writing a blog this month. Nothing big happened that I haven’t already shared, I had no thoughts worth typing out, and I was dangerously close to just uploading a picture of my breakfast and calling it content. But last night I had a dream. One of those super vividContinue reading “When Blogging Fails, Dreams Deliver”
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