Through the drizzle to the train station and off to Zwolle I went. To a park that literally translates to ‘English Work’. While it sounds like a very industrial name, it’s quite the opposite. Nature tralis, water spots and many cool trees are among the things you can find at this park and it’s biggerContinue reading “Engelse Werk Park”
Tag Archives: Congenital Rubella Syndrome
June 25th – Food, Farms and…Where are the Flamingos?!
My first bus tour! There’s always a time and a place for new experiences and the perfect place to experience your first bus tour…or should I say coach tour…is on vacation. We were picked up at the entrance of Villa Vicky where we were staying. I got a front seat – cuz Deafblind people areContinue reading “June 25th – Food, Farms and…Where are the Flamingos?! “
June 24th – Trains and Castles
I was surpised to feel quite good as I woke up on Wednesday morning. I don’t usually sleep well on a flat bed. My adjustable bed at home has been my friend for many years and acommodates the hyper mobile joints very well. So to wake up feeling refreshed after sleeping on a box spring,Continue reading “June 24th – Trains and Castles”
2026 Greek Vacation
Once upon a time a family member asked ‘If you could go anywhere, where would you want to go’. I think their intention was to find a way to arrange something fun for us to do but, I couldn’t answer the question. I’d gotten so used to my illness and disabilities limiting me, that IContinue reading “2026 Greek Vacation”
June 23rd – Travel Day!
To the airport! At 3:30am. I don‘t remember the last time I got up at 2am for anything. Today I just happen to have to get up, because there’s a taxi on it’s way. I can probably count on one hand, the few times I’ve been to an airport. The idea of going there alwaysContinue reading “June 23rd – Travel Day!”
How to Talk to a Deafblind Person Without Panicking
Dear Readers, As I continue my journey through the wonderfully chaotic world of Deafblindness, I’ve noticed something rather interesting about the people around me. Most people want to help. They truly do. Unfortunately, many of them panic slightly first. Some become overly cautious, as if I’m a rare museum artifact that might crumble into dustContinue reading “How to Talk to a Deafblind Person Without Panicking”
The Piece I Didn’t Know Was Missing
For most of my life, I knew two pieces of my Congenital Rubella Syndrome puzzle: vision loss and a heart condition. It took nearly thirty years—and a lot of questions—to realise there was a third piece I’d been living with all along.
All Of Me
Living with multiple illnesses, disabilities, and daily challenges has taught me a great deal—not just about myself, but about the people around me who don’t walk in my shoes. I’m not talking about my family or close friends, the ones who’ve watched me grow and adapt. I’m talking about society at large, and the professionalsContinue reading “All Of Me”
Carrying Light Into 2026
Standing and watching the last-ever street fireworks on New Year’s Eve—before the ban is implemented—made me reflect on all the changes 2025 brought with it. Lower blood sugar. A little more mobility. A hearing aid in my right ear to join the left one I was already wearing. I found new online friends. I dealtContinue reading “Carrying Light Into 2026”
From Bird Drama to Banana Trauma
It’s been a while since I wrote an actual blog.Sure, I’ve been gracing you with the delightful chaos my brain dreams up, but now… brace yourselves… I have actual news. It began with a hard decision. I’d been dealing with sneezing fits and mild breathing issues while caring for our budgies, Yin and Yang. Yang,Continue reading “From Bird Drama to Banana Trauma”
DonnieTown 