I was surpised to feel quite good as I woke up on Wednesday morning. I don’t usually sleep well on a flat bed. My adjustable bed at home has been my friend for many years and acommodates the hyper mobile joints very well. So to wake up feeling refreshed after sleeping on a box spring,Continue reading “June 24th – Trains and Castles”
Tag Archives: CRS
2026 Greek Vacation
Once upon a time a family member asked ‘If you could go anywhere, where would you want to go’. I think their intention was to find a way to arrange something fun for us to do but, I couldn’t answer the question. I’d gotten so used to my illness and disabilities limiting me, that IContinue reading “2026 Greek Vacation”
June 23rd – Travel Day!
To the airport! At 3:30am. I don‘t remember the last time I got up at 2am for anything. Today I just happen to have to get up, because there’s a taxi on it’s way. I can probably count on one hand, the few times I’ve been to an airport. The idea of going there alwaysContinue reading “June 23rd – Travel Day!”
How to Talk to a Deafblind Person Without Panicking
Dear Readers, As I continue my journey through the wonderfully chaotic world of Deafblindness, I’ve noticed something rather interesting about the people around me. Most people want to help. They truly do. Unfortunately, many of them panic slightly first. Some become overly cautious, as if I’m a rare museum artifact that might crumble into dustContinue reading “How to Talk to a Deafblind Person Without Panicking”
Music, Metro’s & Mahoosive Bass Vibrations
Dear Readers, Some trips are relaxing. Some are chaotic. And some involve two women, a white cane, questionable train decisions, suspicious clouds, the smell of smoke, and enough bass vibrations to rearrange your internal organs. This was the third kind. For months, I had been looking forward to seeing Pentatonix live in Amsterdam. I’ve followedContinue reading “Music, Metro’s & Mahoosive Bass Vibrations”
All Of Me
Living with multiple illnesses, disabilities, and daily challenges has taught me a great deal—not just about myself, but about the people around me who don’t walk in my shoes. I’m not talking about my family or close friends, the ones who’ve watched me grow and adapt. I’m talking about society at large, and the professionalsContinue reading “All Of Me”
Carrying Light Into 2026
Standing and watching the last-ever street fireworks on New Year’s Eve—before the ban is implemented—made me reflect on all the changes 2025 brought with it. Lower blood sugar. A little more mobility. A hearing aid in my right ear to join the left one I was already wearing. I found new online friends. I dealtContinue reading “Carrying Light Into 2026”
From Bird Drama to Banana Trauma
It’s been a while since I wrote an actual blog.Sure, I’ve been gracing you with the delightful chaos my brain dreams up, but now… brace yourselves… I have actual news. It began with a hard decision. I’d been dealing with sneezing fits and mild breathing issues while caring for our budgies, Yin and Yang. Yang,Continue reading “From Bird Drama to Banana Trauma”
My Ear-y Tale: Staycations, Second Chances, and Screaming at Microsoft
May: a magical month full of plot twists, personal growth, and one long-standing feud with the wind. This was the month I hit pause on life with a staycation and pressed rewind on a decision I made months ago — to stop wearing my hearing aid. Turns out, sometimes life gives you lemons and audiologyContinue reading “My Ear-y Tale: Staycations, Second Chances, and Screaming at Microsoft”
Cane, Cushions, and Chaos: A 60-Day Saga
Dear loyal readers, There seems to be an inexplicable force in the universe—possibly the same one responsible for tangled headphones and disappearing socks—that prevents me from writing monthly blogs as intended. But fear not! The last 60 days have been packed with excitement, progress, and a few laugh-worthy moments that I just know you’re dyingContinue reading “Cane, Cushions, and Chaos: A 60-Day Saga”
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